Journal of the Korea Bioethics Association 2021 KCI Impact Factor : 1.21

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pISSN : 1598-0324
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2019, Vol.20, No.2

  • 1.

    Improvement of Anonymization in Bioethics Law

    LEE, Seo-hyung | 2019, 20(2) | pp.1~28 | number of Cited : 2
    With the development of information and communications technology, a large amount of information can be easily processed. Accordingly, there has been a growing demand for collecting, anonymizing, and using the personal information of research subjects or donors without obtaining their specific consent while conducting research on human beings or human-derived materials under Bioethics Law. If personal information is being used without the specific consent of the research subject, it should be guaranteed that anonymization under the same law would constitute sufficient protection of personal information. By delving into the concept of personal information, its processing, and the specific criteria presented in the relevant regulations of the United States and the EU, this paper examines whether anonymization under Bioethics Law constitutes sufficient protection of personal information of the subject. Bioethics Law provides extensive protection of the “information relating to individuals” as personal information, separately defining personally identifiable information based on its identifiability and presenting anonymization as a concept that processes it. However, the same law does not provide criteria for identifiability in personally identifiable information, or specific criteria or method for anonymization. In the background of the relevant provisions of the United States and the EU, it is necessary to at least present a more clear definition of personally identifiable information that is subject to anonymization, that is, standards of direct and indirect identifiability, in order for anonymization to constitute a method that can protect personal information under Bioethics Law. In addition, because the risk for identifiability increases with the development of technology, it should be accompanied by an ongoing assessment of the impact of these changes on privacy and the need to change the criteria for identifiability accordingly, as well as efforts to reflect the results in the concepts of personally identifiable information and anonymization under Bioethics Law. Most importantly, in terms of the concept of personally identifiable information and anonymization that has changed accordingly, it is necessary that, by disclosing to the public the need, specific contents, standards and methods of the change, individuals are aware of the standards and procedures by which their personal information is processed, whether it can be adequately protected when processed in this manner and, if not, how the system of protecting personal information should be built, and ultimately for individuals to actively participate in constructing such a system.
  • 2.

    Health Care Professional’s Duty of Care in a Public Health Emergency

    HWANG Sinwoo , KIM Sanghee | 2019, 20(2) | pp.29~43 | number of Cited : 6
    The possibility of a public health emergency is increasing gradually due to new infectious diseases, biological terrorism and natural disasters. In the event of a public health emergency, healthcare professionals who take care of patients on the front line will be given a duty of care as professionals while at the same time taking individual risks, which leads to conflicts of the ethical values. Therefore, the discussion of the reciprocal obligation of the society for the healthcare professionals’ protection as well as the legal obligation to emphasize their responsibility should be preceded in order to perform their duties of care voluntarily. Through a literature review, this article analyzed social expectations and issues about the duty of care, which is considered as the mission of the healthcare professionals in the event of a public health emergency, and suggestions to realize duty of care were given from various aspects. Through a literature review, this article analyzed social expectations and issues about the duty of care, which is considered as the mission of the healthcare professionals in the event of a public health emergency, and suggestions to realize duty of care were given from various aspects. Social efforts to establish a system of social support and protection for the healthcare professionals in the event of a public health emergency could reduce ethical conflicts between the professional and personal values and contribute to the maturity of professional values that aims to voluntarily perform their duties of care.
  • 3.

    Critical review of the "head transplant" surgery plan

    Kuk jin-ho , Ryu, Young-Joon | 2019, 20(2) | pp.45~58 | number of Cited : 0
    Abstract PDF
    This study contains a summary and critical analysis of the recent "head transplant" plan known in the media. The plan, dubbed the “Heaven Project,” was announced in 2017 by Dr. Sergio Canavero, an Italian neurosurgeon, a surgical plan to connect the body of a brain death patient to the head of a quadriplegic patient. The word "head transplantation", which frequently appears in the press, is the expression Dr. Canavelo used in his lectures and press interviews. The medical technology process used in the surgical procedure of this plan was named "GEMINI protocol." In a poll of 1,000 Koreans who were commissioned by Gallup Korea, 58% had negative opinions and 15% had positive opinions to “Heaven Project”. However, 41% of the respondents thought it would be technically possible. In this paper, the authors attempted to analyze the exact contents of the plan, to ensure proper naming, to ensure technical safety, to be feasible under current Korean law, and to public opinion on the technology. The term "hair transplant" is not logically consistent in light of the content, but rather the term "body transplant" or "head-to-body joint surgery" is more appropriate. In addition, the “Heaven Project”, which does not provide sufficient technical collateral for neurorecovery such as animal testing and micromanipulation at this stage, it has not the technical sufficient to secure the safety and resilience required when applied to humans. In legal review, it was unlikely to be done in Korea under the current domestic laws, such as the Medical Law and the Bioethics and Safety Act etc. There were many problems in the review of compliance with ethical regulations, and criticism of the humanities occurred because they attempted to justify research that insufficient theoretical background appealed to public sentiment rather than expert opinion. The results of this study will provide neuroethics and humanists who wish to discuss body transplantation with the scientific and medical evidence necessary for an academic approach and provide the knowledge necessary for the humanities review of neuroscience and neurosurgery.
  • 4.

    A Study on the design of the consciousness of bioethics’ training for nurses

    Choi, MiSun | 2019, 20(2) | pp.59~73 | number of Cited : 4
    The purpose of this study is to design a consciousness of bioethics’ training program for nurses as a practical method of bioethics that can be used in nursing workplace. This researcher designed the Personalist Bioethics Education Program (PBEP) composed of two hours a week for 4 weeks as a learning process to understand and reflect on the concepts and the essential of personalist bioethics as a theoretical background. The educational goals include understanding the concepts of bioethics and personalist bioethics in the first class, understanding and reflecting on the concepts of life beginning and life respect ethics in the second class, understanding and reflecting on the concepts of life ending and bio-medical ethics in the third class, and lastly understanding and reflecting the processes of life and biotechnology ethics in the fourth class. The teaching method is a workshop for adults that includes lectures, reviews, activities, reflections, etc. consisting of the beginning (20 minutes), deployment (90 minutes), and termination (10 minutes). And, finally, consciousness of bioethics’ training program for nurses designed has been validated by five bioethics experts(CVI=1). The application of the consciousness of bioethics’training program for nurses designed in this study in the future will contribute to the establishment and enhancement of the bioethics consciousness of nurses, and in particular, will help expand the horizon of knowledge on personalist bioethics.