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A Study on the Life History of a Person With Amyotrophic Lateral Sclerosis Focused on Before and After its Onset

Jang Jong-Sik 1 송병남 2 Jae-Ho Lim 3 Byoungjin Jeon 4

1극동대학교 작업치료학과
2혜전대학교 작업치료과
3강원도재활병원 작업치료실
4강원대학교

Accredited

ABSTRACT

Objective : By making use of a life history research method, this research described understanding what life is forclients diagnosed with amyotrophic lateral sclerosis (ALS). We were able to have an in-depth understanding ofthe physical and psychological experiences after the disease occurred. Based on these data, we should utilizeeffective work treatment arbitration with other clients. Methods : To explain the physical functions and psychological changes from the management of ALS, in-depthinterviews were conducted with two clients for thirty minutes, 7 to 10 times each. We carried out the experimentuntil no more additional findings occurred. Results : Thus far, the two participants who took part in the research have had some physical experiences incommon; such as a change in weight, limbs, and respiratory muscles, as well as dysphagia. However, they wentthrough a different psychological experience; more precisely, One participant, Mr. Kim, who did not have hisfamily members' support, accepted his death calmly rather holding onto hope. On the other hand, the otherparticipant, Mr. Choi, who had his family members’ support at first lived with hope for life rather than with fearof death, but he also seemed to prepare for his death as time passed. Conclusion : From the above results, we can conclude that there are two different roles of an occupational therapistfor their clients suffering from ALS. In full, at the early stage of the disease, the therapist should act as arehabilitation expert who can comprehend and sympathize with the patient about the changes to their body, Forthe psychological and social functions, and during the terminal stage of the disease, the therapist should act as ahospice expert.

Citation status

* References for papers published after 2022 are currently being built.