Amendment Proposals for the Act on Decisions on Life-Sustaining Treatment to Improve End-of-Life Care (생애말기 의학적 돌봄 향상을 위한 연명의료결정법의 개정방안)

LEE Ilhak (이일학); PARK Hyoung-Wook (박형욱); KOH Youn-suck (고윤석); KIM Dae Kyun (김대균); KIM Min Sun (김민선); KIM Sanghee (김상희); KIM Claire Junga (김정아); KIM Cho Hee (김초희); MOON Jae Young (문재영); BAIK Sujin (백수진); SEO Seyoung (서세영); SONG In Gyu (송인규); YOO Sang Ho (유상호); YOO Shin Hye (유신혜); LEE Yoo Jeong (이유정); CHOI Wonho (최원호)

doi:10.35301/ksme.2024.27.2.51

Amendment Proposals for the Act on Decisions on Life-Sustaining Treatment to Improve End-of-Life Care

Korean Journal of Medical Ethics
Abbr : 의료윤리
2024, 27(2), pp.51~70
DOI : 10.35301/ksme.2024.27.2.51
Publisher : The Korean Society For Medical Ethics
Research Area : Medicine and Pharmacy > General Medicine
Received : March 6, 2024
Accepted : June 25, 2024
Published : June 30, 2024

LEE Ilhak ¹, PARK Hyoung-Wook ², KOH Youn-suck ³, KIM Dae Kyun ⁴, KIM Min Sun ⁵, KIM Sanghee ⁶, KIM Claire Junga ⁷, KIM Cho Hee ⁸, MOON Jae Young ⁹, BAIK Sujin ¹⁰, SEO Seyoung ¹¹, SONG In Gyu ¹², YOO Sang Ho ¹³, YOO Shin Hye ¹⁴, LEE Yoo Jeong ¹⁵, CHOI Wonho ¹⁴

¹연세대학교 의과대학 의료법윤리학과
²단국대학교 의과대학 인문사회의학교실
³서울아산병원
⁴가톨릭대학교 인천성모병원
⁵서울대학교병원 소아청소년과
⁶연세대학교 간호대학
⁷동아대학교 의과대학 의료인문학교실
⁸강원대학교 간호대학 간호학과
⁹충남대학교 의과대학 내과학교실
¹⁰(재) 국가생명윤리정책원
¹¹서울아산병원 종양내과
¹²연세대학교 의과대학 소아과학교실
¹³한양대학교 의료인문학교실
¹⁴서울대학교병원 완화의료임상윤리센터
¹⁵고려대학교 구로병원 가정의학과

Accredited

ABSTRACT

The Act on Hospice and Palliative Care and Decisions on Life-Sustaining Treatment for Patients at the End of Life (ELDA) was passed by the Korean National Assembly in 2016 and came into effect in 2018. Although the stated purpose of the act is to uphold patient autonomy and dignity in the context of end-of-life (EOL) care, its utilization remains low, with only some 40% of EOL decisions reflecting patients’ direct opinions. This study aims to pinpoint areas for enhancing ELDA by comparing it with similar systems in other countries and gathering expert opinions. To achieve this, we reviewed ELDA, compared it with EOL care systems in Taiwan, Japan, the UK, the US, and Germany, and surveyed Korean medical experts to collect their thoughts on how ELDA might be improved. On this basis, we make several recommendations, including broadening the scope of ELDA, bolstering the role of advance directives, and providing education for healthcare professionals. These recommendations are expected to increase the utilization rate of ELDA and enhance the quality of EOL care in South Korea.

KEYWORDS

ELDA, end-of-life care, patient autonomy, advance directives, expert consensus

Citation status

* References for papers published after 2024 are currently being built.

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Korean Journal of Medical Ethics 2024 KCI Impact Factor : 1.15

Amendment Proposals for the Act on Decisions on Life-Sustaining Treatment to Improve End-of-Life Care

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Citation status

* References for papers published after 2024 are currently being built.

Korean Journal of Medical Ethics 2024 KCI Impact Factor : 1.15

Amendment Proposals for the Act on Decisions on Life-Sustaining Treatment to Improve End-of-Life Care

ABSTRACT

KEYWORDS

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