Beyond Models of Disability: Conceptual Engineering and a Pluralistic Approach to Disability (장애와 손상의 구분을 중심으로 본 장애의 모델들: 장애에 대한 다원적 접근의 필요성)

YOU Kihoon (유기훈)

Beyond Models of Disability: Conceptual Engineering and a Pluralistic Approach to Disability

Korean Journal of Medical Ethics
Abbr : 의료윤리
2024, 27(3), pp.127~153
Publisher : The Korean Society For Medical Ethics
Research Area : Medicine and Pharmacy > General Medicine
Received : August 11, 2024
Accepted : September 9, 2024
Published : September 30, 2024

YOU Kihoon ¹

¹서울대학교

Accredited

ABSTRACT

The conceptualization of disability is not merely a descriptive issue but also a normative one, as the way disability is viewed can fundamentally shift the focus of what constitutes ethically appropriate support for disabled people. This paper reviews the historical debates surrounding models of disability over the past several decades, arguing that each model is a product of conceptual engineering, developed in response to normative needs related to disability. Given the persistent conflicts between these models, we propose a "pluralistic approach to disability" as a solution to the deadlock between them. It is argued that the conceptualization of disability does not require adopting a single stance among conflicting models; rather, by employing a pluralistic approach as part of strategic conceptual engineering, it becomes possible to more effectively address the diverse normative demands surrounding disability

KEYWORDS

social model of disability, social constructivism, illness narrative, disability studies, conceptual engineering

Citation status

* References for papers published after 2024 are currently being built.

[journal] Goldiner A / 2022 / Understanding"disability"as a cluster of disability models / J Philos Disabil 2 : 28~54

[book] Wendell, S / 1996 / The rejected body: feminist philosophical reflections on disability / Routledge

[book] Barnes E / 2016 / The minority body : a theory of disability / Oxford University Press

[book] Oliver M / 1990 / The politics of disablement : a sociological approach / Palgrave Macmillan

[other] Union of the Physically Impaired Against Segregation (UPIAS) / 1976 / Fundamental principles of disability / UPIAS

[book] Barnes C / 1998 / Disability reader: social science perspectives / Continuum

[journal] Priestley M / 1998 / Constructions and creations : idealism, materialism and disability theory / Disabil Soc 13(1) : 75~94

[journal] Crilley, M. / 2016 / Material disability: creating new paths for disability studies / CEA Critic 78(3) : 306~311

[book] Smith SR / 2008 / Arguing about disability:philosophical perspectives / Routledge

[journal] Harris J / 2000 / Is there a coherent social conception of disability? / J Med Ethics 26(2) : 95~100

[book] Finkelstein V / 1980 / Attitudes and disabled people: issues for discussion / World Rehabilitation Fund

[book] Barnes C / 1991 / Disabled people in Britain and discrimination: a case for anti-discrimination legislation / C. Hurst & Company

[book] Mason M / 1990 / Disability equality in education / ILEA

[book] Haslanger S / 2024 / The Stanford encyclopedia of philosophy / Stanford University

[journal] Sveinsdóttir Á / 2015 / Social construction / Philos Compass 10(12) : 884~892

[journal] Haslanger S / 2007 / "But mom, crop-tops are cute!" : social knowledge, social structure and ideology critique / Philos Issues 17(1) : 70~91

[book] Scott RA / 1969 / The making of blind men : a study of adult socialization / New York Association for the Blind

[book] Garland-Thomson R / 1997 / Extraordinary bodies : figuring physical disability in American culture and literature / Columbia University Press

[journal] Swain J / 2000 / Towards an affirmation model of disability / Disabil Soc 15(4) : 569~582

[journal] Cameron C / 2007 / Whose problem? : disability narratives and available identities / Community Dev J 42(4) : 501~511

[book] Shakespeare T / 2006 / Disability rights and wrongs / Routledge

[book] Kafer A / 2013 / Feminist, queer, crip / Indiana University Press

[book] Oliver M / 1996 / Understanding disability: from theory to practice / Macmillan Publishers Limited

[book] Penson WJ / 2015 / Madness, distress and the politics of disablement / Policy Press

[journal] Howard D / 2018 / On valuing impairment / Philos Stud 175 : 1113~1133

[journal] Tremain, S. / 2001 / On the government of disability / Soc Theory Pract 27(4) : 617~636

[journal] Beaudry JS / 2016 / Beyond(models of)disability? / J Med Philos Forum Bioeth Philos Med 41(2) : 210~228

[journal] Terzi L / 2004 / The social model of disability : a philosophical critique / J Appl Philos 21(2) : 141~157

[book] Hirschmann NJ / 2016 / Disability and political theory / Cambridge University Press : 99~122

[book] Hughes B / 2002 / Disability studies today / Polity Press

[journal] Morris J / 2001 / Impairment and disability : constructing an ethics of care that promotes human rights / Hypatia 16(4) : 1~16

[book] Thomas C / 2002 / Disability studies today / Polity Press : 38~57

[journal] Clare E / 2001 / Stolen bodies, reclaimed bodies : disability and queerness / Publ Cult 13(3) : 359~366

[book] Thomas C / 1999 / Female forms: experiencing and understanding disability / Open University Press

[book] Thomas C / 2010 / New directions in the sociology of chronic and disabling conditions: assaults on the lifeworld / Palgrave Macmillan

[journal] Amundson R / 2008 / Bioethics and disability rights : conflicting values and perspectives / J Bioeth Inq 5(2/3) : 111~123

[journal] Jenkins K / 2021 / Disability, impairment, and marginalised functioning / Australas J Philos 99(4) : 730~747

[book] Crow L / 1996 / Encounters with strangers: feminism and disability / Women’s Press

[journal] Silvers A / 2003 / On the possibility and desirability of constructing a neutral conception of disability / Theor Med Bioeth 24(6) : 471~487

[journal] Trautmann J / 1982 / Can we resurrect Apollo? / Lit Med 1(1) : 1~18

[thesis] Hwang I / 2011 / Medicine and narrative / Seoul National University

[book] Kleinman A / 1988 / The illness narratives / Basic Books

[book] Frank AW / 1991 / At the will of the body : reflections on illness / Houghton Mifflin Company

[book] Frank AW / 1995 / The wounded storyteller: body, illness, and ethics / University of Chicago Press

[journal] Charon R / 2001 / The patient-physician relationship. Narrative medicine : a model for empathy, reflection, profession, and trust / JAMA 286(15) : 1897~1902

[book] Charon R / 2016 / The principles and practice of narrative medicine / Oxford University Press

[journal] Morris J / 1993 / Feminism and disability / Fem Rev 43(1) : 57~70

[journal] Finkelstein V / 1996 / Outside, ‘inside out’ / Coalition : 30~36

[journal] Oliver M / 2013 / The social model of disability : thirty years on / Disabil Soc 28(7) : 1024~1026

[book] Creath R / 1990 / Dear Carnap, dear Van: the Quine-Carnap correspondence and related work / University of California Press

[book] Cappelen H / 2018 / Fixing language: an essay on conceptual engineering / Oxford University Press

[journal] Choi S / 2021 / Another Defence of Being Victim-like: Natural Kinds, Conceptual Engineering, and Being Victim-like / Seoul Law J 62(2) : 1~38

[book] Haslanger S / 2012 / Resisting reality: social construction and social critique / Oxford University Press

[book] Eklund M / 2014 / Metasemantics: new essays on the foundations of meaning / Oxford University Press

[book] Cappelen H / 2020 / Conceptual engineering and conceptual ethics / Oxford University Press

[journal] Cantalamessa EA / 2021 / Disability studies, conceptual engineering, and conceptual activism / Inquiry 64(1-2) : 46~75

[book] Linton S / 1998 / Claiming disability: knowledge and identity / New York University Press

[book] Silvers A / 2010 / Philosophical reflections on disability / Springer

[book] Siebers T / 2008 / Disability theory / University of Michigan Press

[book] Beaudry JS / 2019 / The Oxford handbook of philosophy and disability / Oxford University Press

[book] Haslanger S / 2012 / Resisting reality:social construction and social critique / Oxford University Press

[journal] Chalmers DJ / 2011 / Verbal disputes / Philos Rev 120(4) : 515~566

[book] Brigandt I / 2020 / Conceptual engineering and conceptual ethics / Oxford University Press

[book] Beresford P / 2010 / Towards a social model of madness and distress?: exploring what service users say / Joseph Rowntree Foundation

[book] Ásta / 2018 / Categories we live by: the construction of sex, gender, race, and other social categories / Oxford University Press

[book] Jenkins K / 2023 / Ontology and oppression: race, gender, and social reality / Oxford University Press

[journal] Mason R / 2020 / Rejecting the"implicit consensus" : a reply to Jenkins / Thought J Philos 9(2) : 140~147

[book] Haslanger S / 2012 / Resisting reality:social construction and social critique / Oxford University Press

KJCKorea
Journal Central

Korean Journal of Medical Ethics 2024 KCI Impact Factor : 1.15