Psychometric Properties of the Modified Barthel Index for Children With Rare Disorders

Yoonjeong Lim; Kevin T. Pritchard; Sanghun_Nam (남상훈); Ickpyo Hong (홍익표)

doi:10.14519/kjot.2020.28.4.09

Psychometric Properties of the Modified Barthel Index for Children With Rare Disorders

Korean Journal of Occupational Therapy
Abbr : Korean J of Occup Ther
2020, 28(4), pp.111-120
DOI : 10.14519/kjot.2020.28.4.09
Publisher : Korean Society Of Occupational Therapy
Research Area : Medicine and Pharmacy > Working Therapeutics
Received : February 22, 2020
Accepted : June 15, 2020
Published : December 30, 2020

Yoonjeong Lim ¹, Kevin T. Pritchard ², Sanghun_Nam ³, Ickpyo Hong ⁴

¹Let’s Talk Therapy
²Division of Rehabilitation Sciences, University of Texas Medical Branch
³연세대학교(미래캠퍼스)
⁴연세대학교

Accredited

ABSTRACT

Objective: The Modified Barthel Index (MBI) measures individuals’ level of independence in performing activitiesof daily living. The purpose of this study was to examine the internal consistency and construct validity of theMBI for children with rare disorders. Methods: The study participants are children with rare disorders who have muscle weakness including Barthsyndrome and congenital muscular dystrophy (N = 113). The MBI was completed by participants in either anonline format utilizing the UF Qualtrics system or a pencil-and-paper format. Statistical analysis was conductedto examine the psychometric properties of the MBI. Results: The MBI showed excellent internal consistency for children with Barth syndrome (Cronbach’s α = .91)and congenital muscular dystrophy (Cronbach’s α = .93). Construct validity was supported by a significantdifference in MBI scores among participants grouped by diagnoses. MBI score was significantly differentbetween the unaffected group and congenital muscular dystrophy (p < .0001) as well as between the unaffectedgroup and Barth syndrome (p < .0001). Conclusion: The psychometric properties of the MBI present good reliability and construct validity suggestingsuitability for use as an outcome measure for children with rare disorders.

KEYWORDS

Activities of Daily Living, Children with Rare Disorders, MBI, Outcome Measure

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Korean Journal of Occupational Therapy 2023 KCI Impact Factor : 0.81

Psychometric Properties of the Modified Barthel Index for Children With Rare Disorders

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* References for papers published after 2023 are currently being built.

Korean Journal of Occupational Therapy 2023 KCI Impact Factor : 0.81

Psychometric Properties of the Modified Barthel Index for Children With Rare Disorders

ABSTRACT

KEYWORDS

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