@article{ART003383349},
author={윤석주},
title={What Is Shared in Shared Decision-Making? Sustaining Care Without Consensus},
journal={Korean Journal of Medical Ethics },
issn={2005-8284},
year={2026},
volume={29},
number={3},
pages={189-205}
TY - JOUR
AU - 윤석주
TI - What Is Shared in Shared Decision-Making? Sustaining Care Without Consensus
JO - Korean Journal of Medical Ethics
PY - 2026
VL - 29
IS - 3
PB - The Korean Society For Medical Ethics
SP - 189
EP - 205
SN - 2005-8284
AB - Hospice admission is often framed as a model of shared decision-making (SDM) at the end of life, yetdisagreement can persist even after decisions are made. In South Korea, hospice care is governed bystatutes prioritizing patient self-determination while remaining deeply embedded in expectations offamily involvement and filial responsibility, complicating what is “shared” when hospice itself carriesdivergent meanings. Drawing on seven months of ethnographic fieldwork in a university-affiliatedhospice ward in Seoul, including participant observation and interviews with patients, relatives, andhealthcare professionals, this study examines two purposively selected cases of advanced cancerin which hospice decisions were repeatedly contested by family members. Disagreement centerednot only on treatment preferences but on competing meanings and futures associated with hospiceadmission. Decision-making persisted post-admission as professionals adjusted conversationsregarding dying and end-of-life preparation. Authority was relationally distributed, with claimsgrounded in embodied suffering, caregiving labor, financial responsibility, familial obligation, andprofessional expertise. These findings suggest that hospice SDM involves not merely achievingconsensus, but also sustaining care amid enduring disagreement and negotiating relational authoritywhen consensus remains unsettled.
KW - hospice care;decision making;shared;terminal care;family;ethnography;Republic of Korea
DO -
UR -
ER -
윤석주. (2026). What Is Shared in Shared Decision-Making? Sustaining Care Without Consensus. Korean Journal of Medical Ethics , 29(3), 189-205.
윤석주. 2026, "What Is Shared in Shared Decision-Making? Sustaining Care Without Consensus", Korean Journal of Medical Ethics , vol.29, no.3 pp.189-205.
윤석주 "What Is Shared in Shared Decision-Making? Sustaining Care Without Consensus" Korean Journal of Medical Ethics 29.3 pp.189-205 (2026) : 189.
윤석주. What Is Shared in Shared Decision-Making? Sustaining Care Without Consensus. 2026; 29(3), 189-205.
윤석주. "What Is Shared in Shared Decision-Making? Sustaining Care Without Consensus" Korean Journal of Medical Ethics 29, no.3 (2026) : 189-205.
윤석주. What Is Shared in Shared Decision-Making? Sustaining Care Without Consensus. Korean Journal of Medical Ethics , 29(3), 189-205.
윤석주. What Is Shared in Shared Decision-Making? Sustaining Care Without Consensus. Korean Journal of Medical Ethics . 2026; 29(3) 189-205.
윤석주. What Is Shared in Shared Decision-Making? Sustaining Care Without Consensus. 2026; 29(3), 189-205.
윤석주. "What Is Shared in Shared Decision-Making? Sustaining Care Without Consensus" Korean Journal of Medical Ethics 29, no.3 (2026) : 189-205.
