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A Qualitative Study on the Caring Experience of Primary Caregivers for Adults with Developmental Disabilities Living in the Age of COVID-19

  • Journal of Special Education: Theory and Practice
  • Abbr : JSPED
  • 2022, 23(1), pp.1-32
  • DOI : 10.19049/JSPED.2022.23.1.01
  • Publisher : Research Institute of the Korea Special Education
  • Research Area : Social Science > Education
  • Received : August 4, 2021
  • Accepted : September 6, 2021
  • Published : March 31, 2022

Kim, Eunjeong 1 PARK, JAE YEON 2

1대구대학교 청소년상담복지학과 석사과정, 청소년정신건강연구소
2대구대학교

Accredited

ABSTRACT

[Purpose] This study was intended to explore in depth the caring experience of primary caregivers of children with developmental disabilities in adulthood living in the era of COVID-19. The experience of caring for children before COVID-19 the experience of caring for children after the COVID-19 situation, and what is most needed as a primary caregiver in the COVID-19 situation were explored. This study examined in detail the experience of caring for children with developmental disabilities in adulthood and the experiences that have changed since then compared to before the COVID-19 situation, and to seek ways to support adults with developmental disabilities and their primary caregivers in the event of an infectious disease crisis. [Method] For this purpose, in this study, 9 primary caregivers who are taking care of children with developmental disabilities in adulthood living in Gyeongsangbuk-do under the COVID-19 situation were selected as study subjects. The selected study participants were interviewed in a 1:1 interview method using open-ended and semi-structured questions for 5 months from October 2020 to February 2021. The interview was conducted while observing social distancing and personal isolation rules. The extracted data were analyzed through Consensual Qualitative Research (CQR). [Results] Total 3 domains, 12 categories, and 33 meaningful concepts were derived through CQR analysis. The three areas from the analysis were 'experiences of daily life before COVID-19', 'we who are experiencing COVID-19 for the first time’, and 'overcoming infectious diseases, growth, and hope'. [Conclusion] Based on the results of this study, the practical and policy measures that individuals and society should strive for are presented in relation to the care, study, and career of children with developmental disabilities in adulthood in an infectious disease crisis.

Citation status

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