@article{ART001567423},
author={YI, SANG WOOK and Cho, Eunhee},
title={The Need of Public Discussion for the Desirable Operation of a Biobank},
journal={Journal of the Korea Bioethics Association},
issn={1598-0324},
year={2011},
volume={12},
number={1},
pages={33-52}
TY - JOUR
AU - YI, SANG WOOK
AU - Cho, Eunhee
TI - The Need of Public Discussion for the Desirable Operation of a Biobank
JO - Journal of the Korea Bioethics Association
PY - 2011
VL - 12
IS - 1
PB - The Korean Bioethics Association
SP - 33
EP - 52
SN - 1598-0324
AB - We argue that there are a number of important ethical, institutional, and cultural issues we need to examine for the successful operation of a biobank, which is recently pursued by many countries. A biobank requires the commitments of lots of people for a long period of time, and the information gathered there are diverse, and some of them, sensitive. Also, the informed consent for a biobank has to be quite comprehensive due to the intrinsically uncertain nature of the future research related to it, and social, due to the unique characteristics of genetic information. These facts suggest, we claim, that a biobank poses additional ethical challenges to those of conventional biomedical research. In order to tackle the challenges, we argue, it is crucial to establish proper social support for the biobank research and trust in its management. We discuss British and Japanese approaches to a biobank in contrast to Iceland's and Tonga's approaches, illustrating our claims. We also discuss the limitations of conventional anonymization in the case of biobanks, and consider the 'open consent' strategy of the Personal Genome Project as a potential alternative.
KW - Biobank;Informed Consent;Comprehensive Consent;Social Support;Anonymization;Genomic Epidemiology
DO -
UR -
ER -
YI, SANG WOOK and Cho, Eunhee. (2011). The Need of Public Discussion for the Desirable Operation of a Biobank. Journal of the Korea Bioethics Association, 12(1), 33-52.
YI, SANG WOOK and Cho, Eunhee. 2011, "The Need of Public Discussion for the Desirable Operation of a Biobank", Journal of the Korea Bioethics Association, vol.12, no.1 pp.33-52.
YI, SANG WOOK, Cho, Eunhee "The Need of Public Discussion for the Desirable Operation of a Biobank" Journal of the Korea Bioethics Association 12.1 pp.33-52 (2011) : 33.
YI, SANG WOOK, Cho, Eunhee. The Need of Public Discussion for the Desirable Operation of a Biobank. 2011; 12(1), 33-52.
YI, SANG WOOK and Cho, Eunhee. "The Need of Public Discussion for the Desirable Operation of a Biobank" Journal of the Korea Bioethics Association 12, no.1 (2011) : 33-52.
YI, SANG WOOK; Cho, Eunhee. The Need of Public Discussion for the Desirable Operation of a Biobank. Journal of the Korea Bioethics Association, 12(1), 33-52.
YI, SANG WOOK; Cho, Eunhee. The Need of Public Discussion for the Desirable Operation of a Biobank. Journal of the Korea Bioethics Association. 2011; 12(1) 33-52.
YI, SANG WOOK, Cho, Eunhee. The Need of Public Discussion for the Desirable Operation of a Biobank. 2011; 12(1), 33-52.
YI, SANG WOOK and Cho, Eunhee. "The Need of Public Discussion for the Desirable Operation of a Biobank" Journal of the Korea Bioethics Association 12, no.1 (2011) : 33-52.
