Journal of Special Education: Theory and Practice 2023 KCI Impact Factor : 1.96
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pISSN : 1598-060X / eISSN : 2734-0090
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Qualitative Exploration for Family Support Required by Mothers of Infant with Developmental Delays
- Journal of Special Education: Theory and Practice
- Abbr : JSPED
- 2020, 21(4), pp.155-189
- DOI : 10.19049/JSPED.2020.21.4.06
- Publisher : Research Institute of the Korea Special Education
- Research Area : Social Science > Education
- Received : November 10, 2020
- Accepted : December 14, 2020
- Published : December 31, 2020
1중부대학교
Accredited
ABSTRACT
[Purpose] Early intervention for infants with developmental delay has the advantage of preventing the deepening of disabilities and the various problems that result from them. For early intervention, various methods of support should be provided to families raising infant with developmental delay. Therefore, this study sought to find out what type and content of family support is needed by mothers raising infant with developmental delay and to find directions and specific methods for family support. [Method] For this purpose, 12 mothers of infant with developmental delay who are using child development centers and general hospital therapy service in D district participated in the study. In addition, in-depth interviews were conducted according to the in-depth interview guide. [Results] As a result, four major themes - diagnosis and discovery of disability, parenting, education and therapy, family relationships and the restoration of function - and ten sub-topics related to them were discovered. And the types of family support needs were divided into emotional, physical, financial and institutional support, and support for information provision. [Conclusion] Among the four types of family support, the needs for information provision was the highest. In particular, mothers wanted to get specific information from experts on parenting, education and treatment for their infant. Secondly, emotional support for the recovery of parenting stress and family relationships was high. Physical, financial and institutional support were required to improve the care system and voucher utilization methods with formal support provided by the state and local government.
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