Caregiving by the Aging Parents of Children with Developmental Disabilities: A Scoping Review (노년기 부모의 발달장애 자녀 돌봄 경험에 대한 범위 연구)

Yu Ri Kim (김유리); Choi,  A-Reum (최아름); Koh, Hee-Sun (고희선)

doi:10.19049/JSPED.2022.23.3.06

Caregiving by the Aging Parents of Children with Developmental Disabilities: A Scoping Review

Journal of Special Education: Theory and Practice
Abbr : JSPED
2022, 23(3), pp.129-154
DOI : 10.19049/JSPED.2022.23.3.06
Publisher : Research Institute of the Korea Special Education
Research Area : Social Science > Education
Received : August 10, 2022
Accepted : September 12, 2022
Published : September 30, 2022

Yu Ri Kim ¹, Choi, A-Reum ², Koh, Hee-Sun ¹

¹이화여자대학교
²이화여대대학교

Accredited

ABSTRACT

[Purpose] The purpose of this study was to review the literature about caregiving by aging parents of children with developmental disabilities. Specifically, the purpose was to synthesize the literature in relation to key themes involving the caregiving experience of aging parents. [Method] A scoping review was conducted to map the literature concerning caregiving by aging parents for their children with developmental disabilities. In total, 36 studies were identified and included. The 36 studies were coded with respect to publication year, participants, research design, and findings. In addition, all the studies were thematically categorized. [Results] The results indicated that relatively few Korean studies have been conducted compared to international studies. Most studies employed a quantitative research approach in which survey questionnaires were used. A small number of studies used qualitative research or mixed methods research. Three Key themes were identified: caregiving status, the impacts of caregiving, and future caregiving. Some of the aging parents reported caregiving satisfaction, but the others reported caregiving burden and stress. In addition, many studies showed the impact of caregiving on the physical health of the aging parents. One of the concerns of aging parents was future caregiving for their adult child with developmental disability. [Conclusion] The implications for future research and practice are discussed.

KEYWORDS

aging parents, caregiving, developmental disability, family support, future plan, scoping review

Citation status

* References for papers published after 2023 are currently being built.

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Journal of Special Education: Theory and Practice 2023 KCI Impact Factor : 1.96

Caregiving by the Aging Parents of Children with Developmental Disabilities: A Scoping Review

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* References for papers published after 2023 are currently being built.

Journal of Special Education: Theory and Practice 2023 KCI Impact Factor : 1.96

Caregiving by the Aging Parents of Children with Developmental Disabilities: A Scoping Review

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